The NIHR BioResource holds various types of data on its participants that may be used for data-only research, or as the basis of selection to experimental medicine studies.
It includes data we requested at enrolment:
- The original consents (of course!)
- Personal details, that we use to contact participants to keep them informed, and invite them to take part in studies
- Self-reported demographics (age, gender, ethnicity) and health and lifestyle factors
- Summary clinical details, if the participant was recruited from a clinic setting.
And is supplemented by data we commission on samples taken, e.g.:
- Genetic data
- Metabolic data.
It will also be supplemented – but is not yet – by data that we acquire from other sources, such as NHS Digital.
All these will be described on other pages of this section.